Friday, March 24, 2017

Hard News and Good News (Day 2 of 13)

Do: Remember that the top step is a little taller than the others when you are carrying Timothy, groceries, and miscellaneous objects.

Don't:  Touch the screen of your phone accidentally when using Google Maps in the middle of Philadelphia.  This may, through the magic of the electronic age, add another stop at the train station before the hospital.

Today was fairly predictable, with just one extra stop (chuckle).  Remarkably we weren't late.

He's just so sad all the time. (Laughing...note sarcasm)

The casting went pretty well.

 He remembered the pain of recasting and when they sent a new doctor to take the cast off, he...well...hmmm...let them know it.  Let's just say that is vocalizations could be heard throughout the floor.  It didn't hurt and part of it was fear/anger, so I just constantly reassured him (though not sure he could hear and kissed his forehead. For the second cast they sent in a doctor that was familiar and he LOVES.  He didn't cry, not a peep.

He HATES the saw with a passion, but I think I would too.

Dr. VB and another doctor (the one he loves and I'm BLANKING on her name) recast his feet and legs.  We go through another round of this on Monday.

This part does hurt, not the recasting itself, but the positioning and stretching of his feet.  He's told me throughout this afternoon, "Mommy, my feet owie."  He says it with a smile, but they hurt.

He chose red and blue for Captain America.  He's really never seen him, except for a toy, but loves playing Captain America with his brother (smile).

Timothy is just a brave kid and an inspiration in spirit.  He goes through so much, but smiles through it.

Soooo....I was able to have a longer talk with the doctor, asking questions.  I'm still processing, thus this blog not being super informative, but I'll share what I'm currently chewing on.  It's not bad, but just "more".

Timothy's legs and the balls that go into his hip sockets (forgive me technical terms...chuckle) are above the actual socket.  Does that make sense?  Picture looking at a picture of your hip sockets and your legs are not connected and muscles and such have brought the top end of your legs above those sockets.

They are going to try to bring them down, but that doesn't always work.  When that happens, they may shorten the bone.  If you think about someone trying to make you shorter by taking a horizontal inch or two of your bone, then you have the idea.  That's pretty hard to get my mind around.

They also may have to work on the hip socket itself, but cannot tell until they go in.  Plates and pins are a definite.

Not everything was hard news though.  They are doing two last castings for a reason.

Did you pick up one very important word from the last sentence?  "Last"

They will be doing surgery on his feet as well, to bring them to a flat position (that is the hope at least).  Yes, this means more surgery, but it also means that when this full body cast comes off and he has a few weeks of recovery...HE CAN LEARN TO WALK!!!

THAT has been the goal all along.  Yes, there are possibilities of things coming up and more surgeries being needed.  We know at least one wrist surgery is in the plan.  We are holding onto this thought though...PRAISING GOD!!!!

So that's it.  That's Timothy's eventful day.  We picked up food out of sheer exhaustion and came home to eat and take a LONGGGG nap.  We will head to the grocery store tonight.

It's wild.  We are both just so tired.  Even Timothy is crashing hard at nap and night time.   We are doing good though.  We continue, as always, to ask for prayers.  Surgery is Wednesday at 1:30 most likely.  I'll keep the blog up to date with any changes.

Thank you all for every text you've sent.  Email you've written.  Prayer you've said.  They are felt in our hearts and lives.  For those helping with our bunch of blessings back home, thank you.

To Anna, Max, Bekah, Sarah, Steve, and Mom...thank you for being such amazing kids (sticking together and working hard), a wonderful brother, and an amazing example of a mom.  Thomas, you know I love you and praise God for the man you are and the day I borrowed a pen from you.

Miss you so much Ben, Jael, Gabe, and Rachel!!!! Miss you Tom, Elizabeth, Alessandra, Ivan, and Isabella.

Speaking of Isabella...she found her feet.


Here are  our prayer requests:
*That the surgery goes better than ever expected and that God guides the surgeons hands and decisions. (Dr. VB)
*That there is minimal blood loss.
*That the casting is the least of extremes necessary (not splits position) and there is no swelling.
*That pain is less than expected and managed well.
*For Timothy to emotionally do well through this, trusting us.
*For healing to be thorough and no further surgeries necessary for his hips.
*For the trip back to be "doable" and very uneventful.
*I ask for prayers as well, for me.  Please pray I make the right decisions and am able to rest and stay well.
*Please pray for the family at home to stay safe and for it to be a peaceful time for them.

*Please pray our LOA comes in this week.
*Please pray God touches hearts and we can meet this matching grant in the next few weeks.
*Please pray God protects Grace and Glory.

*Please pray for the Smith family at the loss of their precious Daniel.
*Please pray for the Kelly family.  This young family suffered the loss of the mother, father, and two of their children.  Please pray for their two remaining children and grandmother who survived the fire.  I cannot imagine.
*Please pray for my friend "M" who has a new blessing and is in the process of transition.  Please pray for NO hiccups between the many parties involved.
*Please pray for my friend "K" and her husband and child.  They are at the date of when their baby should've been born (who went to be with Jesus). 
*Please pray for many in the battle of discouragement/feeling of failure.  This seems to be the tactic the master of lies is using with MANY right now.  It's dark and a twisting that satan likes to do.  Please pray protection for all those facing this right now.
*Please pray for Brandi (someone precious to me) who is facing surgery on her leg right now, that it goes perfectly.

"Who is like you, Lord God Almighty?
    You, Lord, are mighty, and your faithfulness surrounds you."
Psalm 89:8


We continue to ask for prayerful support as we seek to meet our matching grant with LifeSong for Orphans.  We raise $4000 and they will double it.  We cannot use any of our own money.  Money can be donated online or a check can be sent (with our family name and number on it) sent directly to them.  The directions are on the same link below.  We have been told to expect (if normal can be expected) our next paper for the girls within the week.

LifeSong for Orphans Matching Grant~Family #6758

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