Friday, September 7, 2012

Part of Us, Reality, and Tummy Time

How do I love her? Let me count the ways....

When I look at Jael I see this tiny warrior.  Her strength has been so evident. I am in love.  She IS a part of us.

Most don't look at Jael and see my husband or I, but they should.

I think of my husband and I...two becoming one flesh.  It's very similar with our children.  They are a part of us...our blood is their blood, their blood is ours.  We share the blood of Adam...of Noah.  We are Russian, Chinese, and Ethiopian.  God has fused us together and made us a part of each other. 

We are family.

This week has been an experience like none we've had before.  We waited in a Waiting Room while our daughter's legs were taken off at the knee. 

We are changing bandages on these precious legs while one still leaks blood. 

We take her to the restroom and we see a little fear.  She knows the very real possibility of one of her bandages coming off and having to have it changed on her more sensitive leg.

We give her meds every two hours around the clock (rotating prescription meds and Ibuprofen).  If we are late, she will say in the sweetest little voice, "Mommy, my leg hurts."  It's not excruciating, but knowing she hurts...our heart hurts.

We try to keep Jael still, as friends and family drop by to bring a meal or a gift for our sweet little girl.  She wiggles and kicks her little legs, so excited, but covered by medication so she doesn't completely feel the future pain she can cause by being too rough too early.

These are things we never imagined as parents. 

I'm not sure how to say what I want to say next and REALLY communicate it.

I guess the best way to say it is this.  We are honored to go through this with her.  Her needs are unique, but as you've seen in her pictures, she IS amazing.  We are blessed.

Yet so many children wait.  So many children with strong spirits that are gifts from God.  Special needs children at times have many running the other way.  I don't really understand.  We are not super parents, we are blessed.  Our children are not a choice.  They are a gift.  How blessed we are as a family to parent our little girl.  She has a strength that is teaching adults.  Her birth into our family has honored us.

Jael is a testimony to God's amazing blessings.  I have a feeling she is going take this world by storm.  I don't think that those reading about her are doubting that (smile).

Her first day at home was amazing to me.  After months of waiting for this day.  It is here.  In two weeks we hope to be given the "all clear" to let her tear up this world...being allowed to get up and roam.  For now we manage pain, keep her still, and work on tummy time. 

The following pictures are of "tummy time".  She needs to spend thirty minutes twice a day on her tummy.  When she is on her back (or sides) her legs tend to go up.  When she is on her tummy she will use her muscles to bring her legs the opposite direction.  This increases flexibility.

Please continue to pray for our sweet girl...that infection is kept away, for pain management, for healing.  It's not "easy" as of yet...but again, it's blessed.  Thank you friends for listening to my heart and especially praying for our daughter.

"Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go." Joshua 1:9


  1. Oh she is SO beautiful! What an incredible smile, and I recognize that warrior spirit. What amazing things God does through these precious ones, and you are right, it is an awesome honor to be the mom and be the one to see them through. How did we get so blessed? Lots of memories coming back as I read these posts...praying for your precious girl as she heals.

  2. She IS BEAUTIFUL!! (((HUGS)))
    and prayers

  3. Continuing to pray for you all. I so agree that smile is precious and infectious. God continue to bless, keep and heal.

  4. She is such a testament to GOD's LOVE! To HIS compassion! To HIS HEART!!

    I know that God has woven our family together and made us one! It is a miracle only our Creator can do.

    PRAYING for Jael!!

  5. Your little girl has been through so much and yet she still has that beautiful smile. It makes ME smile! May God continue to bless her...and you!


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