Thursday, September 6, 2012

Feeling Pain, a Little Four Year Old, and Home


Today was a rougher day.  It was the day Jael started to feel pain.  We knew it was bound to happen once the epidural was removed, but knowing it's normal and going to happen doesn't make it an easy thing.

Today started with beautiful sunshine, the middles with my mom, Tom staying home and getting ready for a senior weekend, while Sarah, the twins, and I heading to the hospital.

Jael's drainage tube was removed before we arrived, her epidural was turned off as well (though still in place).  The oral pain meds seemed to be working as she enjoyed her big sis Sarah. 

 
(I know I'm biased, but seriously beautiful girls)


It went well even through the removing of the IV.


But the removing of the epidural was painful for our four year old miracle.



The bruising was obvious on her lower back, as we know is normal.  The epidural meds had prevented her from feeling it.  Her legs were not bringing her pain, but the removal of the avenue that kept her from pain, was not pleasant.  She sobbed until she shook and hiccuped from the tears...gasping from crying so hard. I must admit that having no more wires or tubes attached made me take a deep breath and know it was all worth it....but it was hard...really hard.

The only thing that distracted her was the thought of going to "Child Life" and playing again.

 
We will be forever thankful to our wonderful nurse Courtney.  We were not only blessed that she was our nurse, but that we were able to meet her.
 
Eventually we did see a smile again.  "Child Life" is an awesome place to find it.
 

 
Before we were released we needed to complete one last step.  We needed to learn to change Jael's dressings. Her other leg, the one whose drain had just been removed, was still bleeding.  Not only bleeding, but it surprised Thomas as he removed the pressure dressing with spraying a little. 
 
As a parent, that's not what you want to see.  As anyone, that is not what you want to see.  It can be normal though and was.  By the time we changed the dressing again the clot was formed and the surgeon was very confident that the meds were handling the pain and Jael's healing was where it was supposed to be.  We were exhausted by that point.
 
 
After being packed with supplies, pain meds to be given around the clock every four hours, and 24 hour phone number where we could always reach a nurse on duty, we were allowed to take Jael home. 
 
How could we help but be happy?!!!
 

The waving triplets.
 
We packed up, loaded up the car and couldn't believe the time had finally come.
 


 
We learned quickly that 5:00pm was not the time to take a healing little girl home as we hit rush hour.  Still a half an hour from home Jael woke from sleeping, weepy as her legs began to ache (it was almost exactly when her meds were due to be given again).  Within 30 minutes her smile had shown up again, almost like the sunrise.
 
We've already changed her bandage again as we have found the shape of one of her legs seem to make the "grabbing" of the bandage a little more difficult.  Her legs always been slightly different than each other.  It's still bleeding just a tiny bit as we pull the old bandage off, and now it's sensitive and a little painful as the numbing agent had been removed with the epidural.  We've seen a few tears from our SERIOUSLY brave girl, but her God given joy is never completely far off.
 
Each day as we progress farther from the surgery is a day closer to healing.  Each day is a day closer to walking.  Yes, it's not easy as parents to watch our children hurt, but we often know that healing can bring a strength...a fortitude that is intense, wonderful, and a blessing to witness.
 
Our girl is strong.  I'm not saying my mommy heart is not tender tonight.  There's a part of it that makes this very hard to write about.  The picture above, right after the epidural, is painful to look at.  Yet the picture is a reminder of how far she's come...how brave she is.  God has such a purpose for this little girl.  We are honored to parent her.
 
Please continue to pray for Jael's healing, that there is no infection, and specifically for pain management.  She's more restless than with the epidural and we want to keep ahead of the pain to the best of our ability...and recognize God's ability trumps mans.
 
 
 

Welcome home Jael...thank you Lord, God, Our Father for blessing us.  We don't deserve it and we can never thank You enough for this privilege.
 
"Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go." Joshua 1:9
 








6 comments:

  1. Kat, I'm barely able to finish reading tonight's post for the lump in my throat and the tears in my eyes. Tears of joy and also for you & Thomas as you have to be strong during this time. Any parent would rather take on the pain themselves than have their child go through it. I'm so thankful your sweet STRONG girl has a loving family surrounding her as she heals.
    I like the pics with the "triplets" all together (I bet they've missed their little buddy, huh?), even all 3 sippy cups together in the wagon.
    Thankful Child Life has a supply of smiles! ;) What a fun looking room for when you have to be in the hospital.
    Thanking God that Jael is wireless/tubeless and everyone is HOME sweet Home! Continuing to pray for healing, no infection, management of pain, and some rest for everyone. Praying with much thanksgiving. Love you all!

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  2. May Our Lord of Power and Perfect Compassion, Comfort and Hold Jael from the inside out!

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  3. Praying for you! She looks wonderful. As the daughter of an amputee, there is nothing she won't be able to do. So excited to see what God has planned for her. Thanks for your updates.

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  4. Will pray for your precious daughter and for you as you treat her and mother her through this. What a beautiful smile as she deals with this.
    God bless.

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  5. So happy you are all home!! Will continue praying for smooth days and complete healing and no pain for your brave little lady. Hugs to you~

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  6. Wow, I am amazed! She is home already? Has it even been a week? Maybe I lost track of time!? Praise God! It is so wonderful to know that she is doing well. I will continue to pray for her pain management and healing. I know this is just the beginning of a long road ahead for all of you!

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In the joy of following our Heavenly Father, we sometimes choose to proceed with a whisper, a verse, or a downright shove...no matter how we follow Him, the momentum that follows is like nothing we've ever experienced before.

Join the momentum...it is a beautiful place to be. It's not always easy, but then the best things never are.

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