Monday, March 19, 2018

Calling All Prayer Warriors-Matt


In college I was casual friends with a girl name Donna. 

As adults we reconnected at a Church we were visiting.  I had been told I "need to meet her" as she was a fellow adoptive parent.

A deep friendship developed and we have walked the roller coaster of life together.  God even called us to some of our children at the same time (Jael, David, and Jacob).

Friday night her husband Matt collapsed.  At first they thought it was a heart attack.  They found his lungs filled with food and highly damaged.  They lowed the temperature of his body for 48 hours and put him in a physician induced coma.

There have been good signs.  Though there were blips on his EKG, the cardiologist gave him an all clear.

His temperature has been raised and he's been responsive on his trials off of sedation (though still on life support).  It's been beautiful to watch, even from a distance.

Tonight when being taken to a CT scan, he went into Cardiac Arrest.  They had to shock him several times and his heartbeat is back.

They don't know what's causing any of this.

There is so much more I wish I could share, but their marriage is new and beautiful and true.  Matt is her knight.

Donna is one of God's strong (even if she doesn't feel like it always) warriors.

PLEASE pray friends!
*Please pray  for Matt's COMPLETE healing.
*Please pray for the doctor's to find out what has caused all this (even if it's a series of events).
*Please pray for Donna and the kids...for peace that passes understanding, endurance, and strength.

Tuesday, March 13, 2018

The Legacy and Our Son

It's been five years.

Benjamin came home in 2013.

In 2016 Timothy joined our family.

2017 held two little girls, our newest daughters.

All of them differently abled.  All of them, like all the children, created uniquely them.

This is Jonathan's Legacy...his brothers and sisters.

He opened our hearts.

Not one of our children, not one of our family, was not broken open...made raw...veils lifted by our son's life and death.

It's been five years since we got the call that Jonathan was dead. 

He wasn't though, not really.  He's whole.  He's healthy.  He's walking with our Creator.

If you haven't known our family long, you may not know Jonathan's Story.  I encourage you to read it.   Even if you've known our family for years, I encourage you as well. 

We will never forget you son.


This year has been different.  I picture Jonathan as an adult now, free from pain.
I tell him I love him.  I long to talk with him and apologize
for not getting there fast enough.

I thank God for the ability to love.  
It hurts at times, but I will never wish that away.
There are children that need exactly that out there.
They need love.  They need family.
If you feel like children in laying rooms....dying..... is far off from you, I ask 
you to look at our family.  We thought that once.  

Blessed are those who mourn,
    for they will be comforted.
Matthew 5:4

Jesus said, “Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these.”
Matthew 19:14

Saturday, February 17, 2018

Mini Update

The sound of silence has not been because life is uneventful, it's been a bit more like it takes both hands to dog paddle and keep our heads above water.

Nothing is huge, like the events that unfolded last week in our country.

It's just been daily hiccups and illness.  We lost a precious member of our extended family.  A bit of two steps forward and three steps back.

My Aunt Betty passed away.  My heart misses her so much.  When I went over to share with my mom...she just knew.  She knew her sister was gone.   Not being there was hard, but my mom has battled some fixable health mazes and she couldn't have handled the trip.  We ache for my cousin Eddie.  Please keep him in your prayers.

My Aunt Betty

We've battled at 3-4 day virus that weaves through us one to two at a time.  The scariest was Grace.  She has such narrow airways that I didn't sleep for three days.  She has gotten through it, but now shows possible signs of pink eye or conjunctivitis.  Now Anna and Max are sick.  It's the second time for both.  Don't get me wrong, we are thankful it's not the flu or strep, but the constant is a bit wearying.  We hesitate to bring a child to the doctor's offices unless absolutely necessary.  It's ground zero for the flu.  Tomorrow I miss my granddaughter Alessandra's first birthday, not wanting to risk exposing her.  This breaks my heart.  I know we will be hug her soon, but my grandma heart wanted to be there.  Please pray for our physical (emotional and spiritual) health with the illness and weariness accompanying it.

Please also pray for a blessed birthday for little Alessandra.

Our washing machine died and we had to wade through many phone calls to show we had a warranty. It's never been that difficult to prove before.  They said our washing machine is the car equivalent of "totaled" at only three years old, but the warranty doesn't truly cover another machine (even the same one) with even a small warranty.  We are going on a month without.  This is a total first world problem, nothing serious.  I admit we are a bit spoiled and miss it.  We appreciate a little prayer for direction in the way we should go here.

Financially we are still trying to recover from this last year.  It will be okay, but we continue to appreciate prayer in that department.  We just have hopes of finding normal and getting medical bills paid off.   Please pray for favor and blessing in the financial department if you would. 

We have to get taxes filed for ourselves and our mom, but this year it a bit more complicated and we need aid for both...which takes money that we don't quite have (smile).  Please pray God makes a clear way and we can get taxes, which is weighing on me, done.

Last, our sweet indoor kitty (Sienna) has gone missing.  Nine years ago the transmission on my mom's car (a Toyota Sienna) starting mewing.  On it we found a tiny orange fluff ball with half a tail.  He has been wonderful with each and every child under our roof.  He's the most patient surfer chill.  He snuck out at some point when the door was opened a week ago Saturday (we believe).  He's an adventurer, but usually would stand outside the door and meow until we opened the door and let him back in.  He's only done this one time before now and came back, covered in burrs, three days later.  The weather has mostly been cold and wet.   It's now been a week.  If you feel comfortable, please pray for Sienna's return and safety.  Our kids (and we) are sad and miss him.

Sienna and Anna's Bearded Dragon
taking a nap.

We sent this to our son in the military with the note, "Even
Sienna is waiting for your call."

We have no medical news as of yet.  Right now my mom needs the focus, but hopefully in a couple weeks we will have some news.

I'm sorry updates are few and far between, but it has been one of those weird times.  Everything typically easy, has a hiccup or kink in it.  I think it was my brother that said, "Don't you feel like you're waiting for another shoe to drop...and it's a centipede's?"

That's a bit where we are at.

God is good though.  This we know.

We pray each of you can feel His presence with you right now.

Have a blessed night.

"Not only so, but we also glory in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not put us to shame, because God’s love has been poured out into our hearts through the Holy Spirit, who has been given to us." Romans 5:3-5

Wednesday, January 24, 2018

ONLY GOD~Visit with the Nuerosurgeon

I feel like I can't do this story justice, just how big this is.  The enormity has just filled me up with awe.

People can and may dismiss this as, well...these things just happen sometimes.

We disagree.  We serve an awesome and wonderful God!

He knew.  He KNEW where we were at mentally and physically.  HE KNEW....


Wednesdays are the hardest days to do anything for us.  This is the day we juggle more.  This is the day we have EVERYTHING going on....more than one co-op, home school, babysitting, dialysis.

This was the only day we were able to get in to the neurosurgeon.  We were not going to say no.  This day...this appointment held the results of the sedated MRI.

We knew Hope needed surgery at the base of her skull. Her x-rays made that obvious. Her discs were slipping.  Even we, the newbies to this, could see the severity in Hope's x-ray. This neurosurgeon (one of the leading....which is another God story) said he just wanted the MRI to make sure there wasn't something more extensive needed.

That brings us to this morning.  This morning was a bit chaotic.

Little mini explosions, tiny instances of defiance, washing machine isn't working and so there was a scramble for clothes...

We had multiple babysitters lined up.

Bekah, Grace, Hope, and I swung by and picked up Isabella.  (Sarah needed to head down to college.)
The entire way the babies (all sitting by each other) squealed and chatted in baby talk.  Oh, and they danced to the local Christian radio station.  (I need to get this on video.)

We drove deep into down town to a massive Children's hospital...armed with hand sanitizer and keeping our distance from anyone that even coughed once.

We checked in and waited in a large, fairly quiet, waiting room.

There were only two other children.

Of course, then there was us...and the squeaky shoes.  I had honestly forgotten I had bought them in China until last week.  Isabella has decided she LOVES them.

Imagine a forty minute wait and.... squeak squeak squeaky squeak.  I was laughing so hard and the other parents were good sports.  Our Isabella is a little busy whirlwind.

We were called into a small room with soft light blue the little rooms in the ICU where they call you in to talk about the seriousness of a medical situation.

The doctor came in, all chill with his gray hair and ponytail.  His bedside manner is kind and relaxed.  He looked (minus the white coat) like he should be on a surfboard.

He immediately pulled up Hope's MRI.  I get a feeling he hadn't really examined it beforehand.  He's a highly sought after doctor.  His time is (seriously) precious.

His first word's were, "Hmmmmm....this is different.  I'm going to sit down with the other doctors and go over this."  (This didn't surprise me.  We don't do typical here.)   He said this quietly several times throughout the appointment.

He stated it like he hasn't seen this before.

It's what he said next that fills me with awe and wonder.

He explained that Hope's body had compensated (his words) for the atlantoaxial instability.  There is NO pressure or narrowing of the spinal cord...NONE.  You could tell this in and of itself had surprised the doctor.  That wasn't all though.  IF the discs slip more, she STILL HAD MORE ROOM.  Her body had COMPENSATED.

HOPE DOES NOT NEED SURGERY...neither of the girls do.

He wants them back for x-rays in a year.

I wish you could have heard the doctor's voice.  It was almost like he was stumped as to how this could be.


I think he expected a bigger reaction from me.  I was straight faced.  My brain couldn't process this news.


It wasn't until we arrived in the car that the tears of joy started.  They rolled down my face like a triumphant myriad of angels sung in my heart.


We ask you to join us in praise friends, to our MIGHTY KING!!!!

"May the peoples praise you, God;

    may all the peoples praise you." Psalm 67:3

Friday, January 19, 2018

The Now

This week has been a little rough.  Tuesday night I woke up vomiting.  Wednesday was the absolute worst day for me to possibly get sick.  It's our busiest day and became the busiest the same day I got sick. 

Our washing machine is not working.  We initially thought it was the freeze here, but apparently not.  We don't currently have the funds to fix. 

We've borrowed a vacuum cleaner,  since our just gave up it's ghost. (We were gifted a carpet shampooer for which we are so very thankful!)

Our cat got an abscess on his jawline/throat.  He is our easy, loving, snuggles up next to anyone crying cat. 

My wonderful trying to keep our world together.  He working, trying to get my mom to dialysis, and generally keeping us moving forward. 

We appreciate prayer for health, that we can get fixes figured out, and for financially things to get easier again.  I'm just a bit tired (smile).  We all are.

Have a blessed day friends and a very healthy weekend!

"Rejoice in the Lord always. I will say it again: Rejoice!  Let your gentleness be evident to all. The Lord is near.  Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God."  Philippians 4:4-6

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